The first time I had a seizure,
I was in class, at the front to be precise
I'd been called up to do a sum
When in a fit I was down on the floor
I can't remember much after,
But I know I went home to a worried dad
Mum was no more, that was sad
But her grave still fresh, dad couldn't lose another
I went back to school to a worried lot
People who'd now keep away from me
While some told me I'd chickened out
That that was my only way out
They mocked me, called me sleepy willy
Left notes on my locker with faces on
Told me that was me lying on the floor
Saying cat got my tongue this round
Next time I had a seizure was in the toilet
This time I hit myself on the toilet seat
They had to break me out,
It was serious, I had meds to help me
I had to change schools by now
Teachers feared the worst for me
And my dad was tired by now
Of having to hear me nag and complain
This days I pretty much lead a normal life
Cause I've stuck to my meds
And since we skipped towns I've got a new slate
And I'm not gonna spoil it by telling them my condition
The PO£T
Been falling a bit more often lately
All caused by my fits of late-life epilepsy
The only thing that could be serious
If I crack my head on the edge of something hard
Mostly I just slide down no harm no foul
Luckily my two brawny sons
Always seem to be close by
To assist me in returning to my feet
It's then I receive hell for not being more careful
But they all have no idea what it's like
I totally lose my balance
Like I black out for an instant
Life has some ups and downs... this is a down
service dog rory
nine-year-old girl with seizures
she gets her life back
Dealing with this everyday....
feeling nervous, insecure,
not myself
Like a jigsaw puzzle
missing a few pieces....
I feel incomplete.
Living a stress free life
and maintaining order....
That's what works best for me.
Not knowing when a seizure
will happen-
The lights go dim....
Feeling scared,
feeling helpless.
Laying on the floor
feeling like giving up....
Just let the fear overtake me.
Feeling alone,
I pray to God....
"Dear Lord, please help me
to feel whole again
and give me the strength
to forge ahead
through the raging storm
inside of me."
Time to bring awareness
to the world....
That Epilepsy is a nervous disorder,
not a mental illness.
It does not own or define me.
Bright pics in my imagination
Are quite a typical thing.
However there is an exception
That my nightdreams seldom bring.
Once dreams, as usual, started flocking
In my unwearying head...
I saw you met me, starting talking,
I saw you were in my land!
I hope this dream's a special token,
I hope that it will come true.
All words that I have just now spoken
Are of course only for you!
Today I'm springing in elation,
I feel I'm given a wing!
I can't express all admiration
That's being now my soul's king!
Oh, let the world be full of fairies
Like you! Thanks for your great deeds!
I feel I can reap purple berries
Oh, thanks for your purple seeds!
I hope your life will never hurt you
Because your soul is so kind!
God bless you, Cassidy! Your virtue
Will always stay in my mind!
This poem is dedicated to Cassidy Megan, the founder of Purple Day.
Canadianie, take my lavender ribbon:
I will stretch it to you, my dear, from Russian coasts.
My "Hallelujah!" will at once be free-born
As soon as you reply those loud and distant calls.
I write about the Western very rarely
But this is not your case, undoubtedly, dear.
Don't answer like ice-crust, I ask, I beg you!
Open the secret, kind soul! I would like to hear!
Don't be afraid: the ribbon is not poisoned
But there is Holy water and some chrism.
Don't hide in snow floor, and don't hide in noise, and
Come to my land! Give bravery through your prism!
I'd share my health with you to make my great dream
Come true! Canadianie! Please, tell me what to do!
Well, on the whole, I ask: let's be a straight team
So that my land with me is like your land with you!
Written for my heart, my son, Kyle
Wash me gentle in the river –
Ease me on down with care.
I’m an emotional giver –
It’s my song in the air.
Dry me smooth upon shore’s sliver -
Warm away my despair.
Constant tears are in my eyes,
but I’ll deny that I cry.
God loves me inside and out,
He knows what I’m all about,
but I can’t settle the shout
that sticks down inside my throat
and threatens to choke me dry.
Emotions lacking corners
have only circle borders
and trap me in feelings bleak.
Searching answers to know order
leaves me sadly limp and weak.
First I prayed, but now I rage:
oh, dear God, please turn this page.
World, you allowed darkness,
with its brutal hurtful hiss,
to maim the child life of his.
Harsh cruelness such as this
brought me to my knees
with a Mother’s enraged pleas.
Wash me gentle in the river –
Ease me on down with care.
I’m an emotional giver –
It’s my song in the air.
Dry me smooth upon shore’s sliver -
Warm away my despair.
Let the bed murmur not;
The jealous are behind the door,
To eardrop the noise from the springs.
Let the key seal its hole;
Green eye monsters are behind the door,
To have a glimpse of the angels within .
Let the jealous seek cure;
Ears here,eyes there; peace nowhere;
Epilepsy kills.
Sudden and strangely strong
many shocks flood my body
causing muscles to stiffen
in protest.
Does it hurt?
Sometimes.
My mind drowns itself in
electricity without prior warning
causing a myriad of odd seizures.
Each one different from the
last; no seizure is the same.
My memory is not impaired,
I remember every one and
everything around me,
although speech disappears.
People appear scared, not from me
but from what I have – epilepsy.
Many stigmas float around the
condition, many are as false
as the common school rumour.
Still they are believed like an old
wife’s tale.
Epilepsy?
An unwanted burden,
it limits possibilities,
still I have it and so bare
its unwanted scars.
My life impounded and unfulfilled,
epilepsy is a curse without
any hope of a cure,
it’s only made controllable
by a blend of concoctions created
by textbook intellect.
Still my body and soul remain my own
regardless of how hard it tries
to take control,
I remain confident and strong.
Epilepsy?
Dominant as it may be life must
go on and I must continue to grow
and prosper.