Being Me
'Being me' #EDS #chronicillness #Chiari #pain #fatigue
No rest in day, cant sleep at night
I've even lost my appetite
No fix for me, no cure in sight
No help towards my daily fight
The pain runs deep, too tired to weep
Fall back to bed in restless heap
"Stop being down, don't show your frown"
"Get outside, don't slip that crown"
"Keep on smiling, just fight through"
I hope you'll never have a clue
"It can't be that bad, it's just the stress"
That drives me mad I must confess
Don't tell me what I know's a lie
Torn body is my alibi
Just coz you never heard of this
Don't think it's fine to be remiss
Genetic joints and bendy brain
I'd prefer it if you did refrain
From making out its in my head
You think I love a life in bed?
I pretend 'I'm fine' most every day
It's better for all of you that way
But on days like these I must confess
The act does slip, I look a mess
Some days I rest and be myself
Like scattered dust on ageing shelf
Sorry it doesn't suit your mood
Or makes me sound in constant brood
I know that if you felt this way
"So sorry love" I'd hear you say
"I had no idea, not one clue"
"At how you cope with being you".
Copyright © Victoria Payne | Year Posted 2016
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