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...Continued from Part 1...

Poor little Evelyn, her poor physical conditions at birth puzzled local doctors,
It was a mystery she was born with a dislocated hip and a deformed right foot.

And evidence of bone damage whilst within her mother’s womb, that happened,
9 months  of exhaustive tests, Evelyn the baby is confirmed a OI type III patient.

Today poor Evelyn is small in size, as typical of OI patients, her mobility limited,
She is constantly in need of a new body and leg brace with special shoes fitted.

With an anxious and loving mother and sessions of unending physical therapy,
Evelyn must have monthly doses of intravenous drug to increase her bone density.

At 4 years old now, imagine the frustrations and the helplessness in Evelyn,
She knows she is different, why she is so fragile, her little mind cannot fathom.

All the various injuries and the many broken bones about in her tiny body,
Life is such a challenge, why is she born so unlucky and so much different.

For every 100,000 individuals, six to seven are born with such dire conditions,
If there had been a more fortuitous mutation at a genetic level, these individuals...

They could have been born as legendary mutants, imbued with fantastic abilities,
But a twisted play in Fate's hand, OI children, they struggle even in normal activities...

Only with advances in Science and Medicine can OI sufferers have a normal life,
With bones so brittle that shatter like fragile glass, they have only sheltered lives..


http://www.star2.com/people/2016/01/03/her-bones-are-so-brittle-they-can-break-like-glass/

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