Use It Or Lose It

Walking very rigid with a slight unsteady gait  
As I walk I'll often veer from side to side 
Although by this I could appear to some as being drunk
I feel totally disorientated and utterly defunct

My left arm is just hanging there, not moving from my side
For it's no longer swinging as it should
My mind it has stopped working 
Feels solidified with fear
Oh please don’t say that word 
The word I do not want to hear

Falls just lately, I’ve had many
Though I’m unsure why I’ve had any
Breaking bones and grazing knees
What on earth is happening to me

I sit alone in the waiting room
My left arm is starting to tremor
With my anxiety rising 
Well it isn’t surprising
Waiting for my diagnosis 
On this frightening dilemma

I am called to the room
Where a Neurologist is sitting
And she asks me to walk to the window
Without further ado she looks into my eyes
Saying, ‘Parkinson’s Disease I can see it in your walk'
I was numb and in shock and I could not even talk

It was not what I wanted to hear
But had been on my mind for a year
Then I heard a voice saying over and over
Are you sure
Are you sure 
Are you sure
I’m a widow on my own
There is no one else at home
Only me
Only me
Only me

The first few days in total shock
And all I did was cry a lot
But gradually accepting it, I really had no choice
Then deep inside my soul I heard a soft and gentle voice
It said…
‘It’s neither Cancer nor Alzheimer’s, but Parkinson’s disease
Yes I know it is degenerative, don’t mean to sound insensitive 
But Parkinson’s you have, so keeping active is imperative 
For the many hills and mountains that you will need to climb 
As your symptoms start to worsen, as you go into decline’

So on waking up each morning 
As a bright new day is dawning
My mantra ‘I must use it or I’ll lose it” 
For although I do not want it
I accept that I have got it
So Parkinson’s my friend 
I will fight you to the end

Copyright © | Year Posted 2018



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Date: 10/11/2018 6:20:00 PM
You have bravely given us a private peek into your life, and please know prayers will be coming to you from Kansas my friend. You have educated me also. I did not realize how imperative movement is.
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Gilmour Avatar
Ann Gilmour
Date: 10/12/2018 2:08:00 AM
Many thanks Caren I appreciate your every word. This poem was difficult for me to write, and I have already 'tweeked it' this morn, however, I needed to get these feelings out. My diagnosis was 2 years ago now and generally I am doing ok. Kansas prayers arrived safely dear Caren. Sending hugs to you, Ann xox
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