Notes About The Poem
Paul Callus and I dedicated this poem to my friend Marianne, who had been caring for her grown son for more than a decade. Doctors still don't know what caused him to become ill suddenly and his condition had grown worse with time. He can no longer see, speak or walk. Since Marianne's husband died shortly after Will was born, she devoted all of her time to caring for him at home.
Update -- On September 30, 2018, Marianne died of complications following open heart surgery. Her greatest fear that Will would end up in a long-term care facility is now being realized. I hope you will join me in praying for Will. Surely, Marianne has earned her place in heaven.
Living In Isolation
My son has lost his eyesight
And lacks mobility.
His doctors are confounded,
But I seek no pity.
There is much love in caring
Full time for those in need;
Hard work and sacrifices,
A focus to succeed.
My career was put on hold;
His life is in my hands.
There’s nothing more important;
I bow to life’s demands.
Divesting self-attention
Enduring broken sleep.
Exhaustion brings disruption,
Emotions that run deep.
Few friends now come to visit.
One thing I know for sure --
Without a diagnosis,
They will not find a cure.
The fear of escalation
Disrupted life and hope.
The overwhelming feelings
Destroy the will to cope.
I know my son would thank me,
If only he could speak.
I worry what will happen,
I’m old; his future’s bleak.
* June 25, 2018.
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