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Dystonia

At first, I barely noticed your presence all I saw of you was a swift turn of the head no one else noticed but I did Over time you became bolder extrovert, out there then, everyone noticed when the spasmodic jerking began I hated you. Prayed for you to go away but as time ticked on …. clearly, you were going nowhere you just grew wild, wilder wilder AND WILDER like a windup toy spinning out of control you were reckless with my emotions physical wellbeing too my neck, you caused to twist turn, shake, twist, twist, turn, shake whether standing, sitting or lying in bed the pain was often too much it brought me down right down down I wanted to die I could no longer with live with you especially when the medics had no clue Eventually together we grew you tolerated me and I you until a quarter of a century later …. that’s how long it took. Eventually a Neurologist took one look he recognised you straight away ‘Ah her name is Dystonia she is not a mystery.’ he was confident as he told me it wasn’t all in my head as so many had often said he has helped to calm you down with the Botox injections administered quarterly your wildness is more moderate the pain I felt is far far less and now we can co-relate though we will never fully be mates

Copyright © | Year Posted 2022




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Date: 6/9/2022 9:02:00 PM
Quite a traumatic journey. Mercifully, as you’ve pointed out, there is a cure
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Judy Reeves
Date: 6/10/2022 2:05:00 AM
Thank you for your comment Unseeking Seeker. There is currently no cure but the Botox injections help to calm the symptoms. Take care.

Book: Shattered Sighs