Bend Or Break
People may not always be able to see our black and white stripes;
Others may not be able to understand our triumphs and fights;
We deal often with debilitating chronic pain day in and day out;
We may have to remind people that hypermobility isn't what it's all about;
We may seem "normal" on the outside, and no one seems to see;
That we desperately want a better life - a life where we can be free;
We undergo surgeries, physical therapy, and don't always like the final result;
But we have to remind ourselves that no one deserves to live this way and it's no ones fault;
Was may cry tears of frustration, anger, and sadness when things get tough;
Sometimes we may want to just give in and yell "enough!!"
People don't seem to understand that we are trying our best to live as normal a life as possible;
But we may need a reminder that our dreams may be high - but not impossible;
We may not always like the hands we've been given;
And we may feel powerless of how our lives have been driven;
aWe have spent years searching for answers and begging for doctors to help;
We've been told "it's all in your head" so many times, maybe we began to believe it ourself;
Sadly, for some of this community, help came too late;
Many of us desperately want a diagnosis so we don't receive the same fate;
Sometimes we feel lost in this world that we don't know what to say;
But, everyone knows that if you need help deal with your emotions, that's okay;
We may wheel our chairs or limp with crutches as we fight a war we battle;
There are millions of us around the world - we're all a beautiful dazzle;
We may feel alone sometimes, but we always have each other;
Some of us may go as to say we're all sisters and brothers;
"When you hear hoofbeats - think horses not zebra's" are what doctors say;
If they didn't fixate on that - imagine how many zebra's they'd discover someday;
Ehlers Danlos Syndrome and Hypermobility Spectrum Disorders may change our fate;
But, please remember, "we may the fragile - but we don't break"
Copyright © Skyler Waldron | Year Posted 2026
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