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'It must be EDS' When your hip pain takes a dive And you wake just half alive When your neck slips out of place And the pain spills on your face It must be EDS Thats put you to the test When your back screams just from standing And your head explodes on landing When Chiari pains your brain Swells with thunderstorms and rain It must be EDS It's harsh I must confess When your knees and ankles turn Slightest exercise does burn When you stand up far too quick Feeling dizzy makes you sick When you can't get out of bed Or barely lift your head It must be EDS Annoying little pest When your gut just won't digest Yet follow diet you detest When your jaw falls out of place And every day you force your face To smile and say 'i'm fine' Yet your body draws the line It must be EDS That's made you feel so 'less' When your headache's every day And it's time they docked your pay When you've done all that you can But your career is down the pan It must be EDS That's got you in this mess 'It must be EDS' by Victoria Payne June 2016 https://www.facebook.com/groups/Poemsbyvictoriapayne/
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