Being Me

'Being me' #EDS #chronicillness #Chiari #pain #fatigue No rest in day, cant sleep at night I've even lost my appetite No fix for me, no cure in sight No help towards my daily fight The pain runs deep, too tired to weep Fall back to bed in restless heap "Stop being down, don't show your frown" "Get outside, don't slip that crown" "Keep on smiling, just fight through" I hope you'll never have a clue "It can't be that bad, it's just the stress" That drives me mad I must confess Don't tell me what I know's a lie Torn body is my alibi Just coz you never heard of this Don't think it's fine to be remiss Genetic joints and bendy brain I'd prefer it if you did refrain From making out its in my head You think I love a life in bed? I pretend 'I'm fine' most every day It's better for all of you that way But on days like these I must confess The act does slip, I look a mess Some days I rest and be myself Like scattered dust on ageing shelf Sorry it doesn't suit your mood Or makes me sound in constant brood I know that if you felt this way "So sorry love" I'd hear you say "I had no idea, not one clue" "At how you cope with being you".