Conversation of Schylar
Conversations with Schylar
There is a million reasons why I miss you. There is even more reasons why I love you. You represents so many moments that warmed my heart and lit up my soul.
I remember the excitement in your eyes whenever you saw me. Hands grabbing frantically at my clothes. It not only made me realize how much you need me, but also how much we need you! You just loved whole heartedly, care free. You loved as if there was no tomorrow; giving everything in the moment.
They say you an angel child and the way you loved confirmed that. People tend to look at trisomy 13 babies as non-compatible with life, but doesn’t trisomy kids represents how life should be? How we should love and care? Give everything in the moment and not keep a drop for the next?
My angel child, you loved unconditionally and although you were sick more often than not, you seemed to be the happiest of all. You loved just a little different than us, but in a good way! Somedays I think the world will just be a bit more peaceful, if we loved just a little more like you. For me, you represent what love should be like.
I never knew about trisomy 13 until the day you were diagnosed. Since then, I have seen many photos and videos of trisomy 13 kids. The one thing I always search for, is their eyes. The eyes of an angel child is full of mystery but never hides emotions. Most days your eyes were a little teary and cloudy like a west coast winter’s day. But your eyes also had a sparkle like a drop of water on a white water lily in early spring. There was so much beauty in your eyes and yet they were imperfect.
Your eyes were too sensitive for the bright summer sun, yet it radiated so much warmth and love. The bone chilling autumn wind made you squint while your little tiny hands covered your eyes.
You had pink framed spectacles to improve your sight. Dad, still have them bedside and ever so often look at them thinking that this belongs to my daughter. My heart aches when I look at the spectacles and my whole being longs to hug and kiss you.
There was not only something beautiful about you, there was something perfect. No one can have all four seasons locked in their eyes, yet displays love that encompass the beauty of nature.
I pains to know that I will never be loved the way you loved me. It pains even more knowing that I will nlbe able to love, the same way that you loved…
- Schylar's dad
Comments