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I wish.... I wish you could see the pain inside of my happy smiling face Like no pain that should be felt these days In modern human race I wish my pain could paint a picture, Colours shouting red and black I wish that you could feel the heat As fireworks spark my aching back In neck the burn is squeezing Cheekbones and temples glow The burn turns in to freezing Teeth and jaw as cold as snow To rest my head on softest pillow Akin to lying on brick The pulse so angry in my head is making me feel sick If I dare to try and move, just rise to sit or stand The pressure it takes over So lie back down before I land My neck so tired so weak now And blurry eye sight goes I wish you could just see inside me Crown of head to aching toes. #chiari #EDS Victoria Payne August 2015
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