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Enter Poem or Quote (Required)Required Dear Prader Willi Syndrome. You took my baby and have held it hostage and I'm very angry at you. From birth you've held me hostage as well. Everyday I see you looming over my family and I hate you. You have my son in your ugly claws.. but I will not give him to you. You hear me I WILL NOT let him be taken. I will fight you on every front I know ..so watch out. You do not own him, I do. I am the one that loves him most. I will be there for all the good and the bad and I will love him to no end. My beautiful happy little man is a joy to love.. but it's so very hard day by day. I wake up making my plans and I'm very sure I fall asleep to them as well. These plans are to give my son direction, love, and hope. So you may control him, but guess what?? You don't control me. I will fight and be knocked down but mark my words I WILL GET UP. My son has a mama bear in his corner and I will show my teeth and swipe my claws at you. I will curse you to no end on those long helpless days that promises never to end, all the backwards steps he takes I take with him. I will rejoice in the days that bring joy at making his goals and smile knowing I helped him there. So yes, I will never stop hating you. I will learn to work around you. I will never fear you as I fear my son's future, but not you, Prader-Willi, not you. You see my son is strong and beautiful and loving all that I hoped my children will be and I love him to the moon and back. So, take that Prader-Willi.
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